Mark Update:
It’s been a rough few days. The original feeding tube continued to leak and cause irritation. On Monday they replaced it with a more substantial one. It was done without anesthesia and was incredibly painful.
We were hoping that would be that. Wrong.
The new tube began leaking almost immediately after we got home. For two days we constantly changed out dressings until we ran out of supplies. I called yesterday early evening to ask for more. And was told to take him to the ER.
The ER docs tried a few different things to get the leaking to stop and were unsuccessful. They loaded us up with dressing supplies and told him to go back to radiology this morning.
A quick call to radiation first thing and they told us to contact his surgeon. Met with the surgeon at 10:30 am and it turns out the new tube was never engaged.
For two days stomach acid has been literally burning the skin off his belly. He is in a great deal of pain and incredibly discouraged with this whole process.
I’m so tired that if I sit down, I fall asleep. I can’t imagine what it’s like for him.
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